Skip to main content

Bias and spin in reporting trials of new drugs for breast cancer

A paper published this week in the Annals of Oncology has demonstrated bias in the reporting of  outcome and toxicity of phase 3 randomized controlled trials (RTCs) for breast cancer. These trials are the final stage of testing of the efficacy and toxicity of a new drug or treatment before approval by regulatory agencies.

Papers published in scientific and medical journals have an abstract, a summary of the findings, and it is in this that the results are often presented in a biased way. Of the reports of 164 trials they reviewed, 33% of them showed bias in the reporting of the primary end point (PE) and as many as 67% in reporting the toxicity. Bias in reporting of outcome is common for studies with negative PEs.  Reporting of toxicity is poor, especially for the studies with positive PEs. It isn't that the authors don't give the correct result in the body of the report. The problem is that they put a 'spin' on them.    It is shocking but perhaps the finding is not surprising.

It is often argued that science is 'ethically neutral'. I have never subscribed to such a view. There isn't an ideal position of neutrality;somewhere from which we can see things free from assumptions or even prejudice. There is always a view from somewhere; a perspective that influences the way in which we see or interpret apparently objective data. In short there isn't a view from nowhere.

Science tests ideas, usually by first framing them into clearly testable hypotheses. What this tells us is that science is a human activity, it isn't a body of knowledge existing in some rarefied library. As soon as we touch it we frame it. We bring it into our world view.  It is also the case that science rarely if ever produces definitive answers. For all studies there are caveats; it might be difficult to control or account for all possible variables. This always provides leeway in interpretation of results and it is here that bias and spin are often in play.

Emphasising the positive over the negative in results is a judgement. In the case of Phase 3 human trials such judgement can have significantly harmful consequences. Ethical science isn't simply a matter of 'getting the right result' or the 'result right'. Ethical science should always be alert to its vulnerabilities. It has motive, it involves perspective and decision. Where there are choices there must always be ethical consideration. Scientists should consider the consequences of any bias they may introduce into their reports.

Comments

Popular posts from this blog

Ian Duncan-Smith says he wants to make those on benefits 'better people'!

By any account, the government's austerity strategy is utilitarian. It justifies its approach by the presumed potential ends. It's objective is to cut the deficit, but it has also adopted another objective which is specifically targeted. It seeks to drive people off benefits and 'back to work'.  The two together are toxic to the poorest in society. Those least able to cope are the most affected by the cuts in benefits and the loss of services. It is the coupling of these two strategic aims that make their policies ethically questionable. For, by combining the two, slashing the value of benefits to make budget savings while also changing the benefits system, the highest burden falls on a specific group, those dependent on benefits. For the greater good of the majority, a minority group, those on benefits, are being sacrificed; sacrificed on the altar of austerity. And they are being sacrificed in part so that others may be spared. Utilitarian ethics considers the ba...

Ethical considerations of a National DNA database.

Plans for a national DNA database   will be revealed by the Prime Minister this week. This is the same proposal the Tories and Liberal Democrats opposed when presented by the Blair government because they argued it posed  a threat to civil liberties. This time it is expected to offer an 'opt-out' clause for those who do not wish their data to be stored; exactly how this would operate isn't yet clear. But does it matter and does it really pose a threat to civil liberties? When it comes to biology and ethics we tend to have a distorted view of DNA and genetics. This is for two reasons. The first is that it is thought that our genome somehow represents the individual as a code that then gets translated. This is biologically speaking wrong. DNA is a template and part of the machinery for making proteins. It isn't a code in anything like the sense of being a 'blueprint' or 'book of life'.  Although these metaphors are used often they are just that, metapho...

The unethical language of 'welfare dependency'

It is unethical to stigmatise people without foundation. Creating a stereotype, a generalised brand, in order to  demonize a group regardless of the individual and without regard for the potential harm it may do is unfair and prejudicial. It is one reason, and a major one, why racism is unethical; it fails to give a fair consideration of interest to a group of people simply because they are branded in this way. They are not worthy of equal consideration because they are different.  It seeks also to influence the attitudes of others to those stereotyped. If I said 'the Irish are lazy'; you would rightly respond that this is a ridiculous and unfounded stereotype. It brands all Irish on the basis of a prejudice. It is harmful certainly; but it is worse if I intend it to be harmful. If I intend to influence the attitude of others. And so it is with 'the unemployed'. All I need do is substitute 'work-shy' and use it in an injudicious way; to imply that it applies to...